Mary talks with Jenna about a form of Down syndrome called Translocation that can be inherited under certain circumstances. It’s a fascinating and easy to understand look at the genetics of Down syndrome.
Mary has a wide ranging discussion with Cally Wesson, CEO of British Columbia’s chapter of Variety The Children’s Charity. Cally explains the history of Variety, services that they provide, volunteers, and events they put on, including the annual Show Of Hearts Telethon. Recorded on location at the Variety offices in Burnaby B.C.
Mary talks with Physiotherapist Brenda Horton about how she helped Ainsley, and other children with Down syndrome, learn to walk, run, and swim.
T21Mom – Episode 9 : Hina, the Down Syndrome Resource Foundation’s Occupational Therapist joins us for a conversation about how children with Down syndrome can learn to understand and control their body’s movements, and why the term “Occupational” is a bit of a misnomer.
Understanding Sensory Processing – https://www.spdstar.org/basic/understanding-sensory-processing-disorder
Developmental Progression Pyramid – (the pyramid is included in these presentation notes that can be found on the DSRF website) https://www.dsrf.org/media/Lille%20Ryan%20and%20Hina%20Mahmood%20Increasing%20Independence%20in%20School%20Aged%20Children%20with%20DS%20FINAL.pdf
When to Consult an OT – Document that outlines what types of skills OTs can work on with kids. http://www.dsrf.org/media/When%20to%20consult%20an%20OT.pdf
The Down Syndrome Resource Foundation’s Speech Pathologist, Riley, joins Mary for an in depth and wide ranging look at the work required to help kids with Down syndrome learn to communicate.
Here are some of the links mentioned on the show. For more links to studies and tips on speech and communication, please check our Facebook page “T21Mom”.
Apraxia Kids – organization and web resources supporting people with Childhood Apraxia of Speech (CAS): https://www.apraxia-kids.org/
PECS – Picture Exchange Communication System – https://pecs-canada.com/pecs/
Signing Time – https://www.signingtime.com/
Signing Savvy (video dictionary of signs): www.signingsavvy.com
Touch Chat website – website for the AAC program Ainsley currently uses: https://touchchatapp.com/
Down Syndrome Resource Foundation (DSRF) – www.dsrf.org
Mary talks with Danielle Gibbons, founder of the non-profit Baskets Of Love. Baskets Of Love delivers baskets full of information and goodies to new parents of babies with Down syndrome. They also talk about the Tea21Moms event.
Instagram – @basketsofloveds Facebook – Baskets of Love Down Syndrome Support Society
Mary talks to Ron about the challenges and struggles of life as a single mother of a special needs child. Her labours to find suitable daycare, travelling to and from specialist appointments, finding time for the basics like groceries, and extensive efforts to work with her employer to understand her unique circumstance.