Mary and Ron talk about Mary’s recent trip to Nashville for the Rockin Mom Retreat. Mary talks to a number of the Retreat guests about where they’re from and what they do for self-care. Head on over to the T21Mom Facebook page for some pics and videos. A word of caution – wine may have …
Continue reading “T21Mom – Episode 21 : The Rockin Mom Retreat”
Mary talks with Dr. Karen Bopp about a dual diagnosis of Down syndrome and Autism, something previously thought impossible. They also talk about therapies, diagnosis methods, and support networks. Links mentioned in the show: BRITISH COLUMBIA LOCAL INFANT DEVELOPMENT PROGRAM AUTISM SOCIETY OF BC AUTISM INFORMATION SERVICES OF BC DOWN SYNDROME RESOURCE FOUNDATION
Mary and Ron discuss the need to build a group of friends and family for emotional support.
Mary talks about her experiences with creating an Individualized Education Plan for Ainsley and the struggle of getting the school to play a positive role in the process. Link to the One Pager
Mary talks with Katie Rinald of Blackbird Special Education about her approach to intensive potty training. Blackbird Special Education http://blackbirdse.com [email protected] Chummie Alarms https://chummiebedwettingalarm.com/
Mary talks with Jen Ghioda, an Early Intervention Support Worker, about her role in finding and securing resources for families of children with DS.
DOWN SYNDROME RESOURCE FOUNDATION https://www.dsrf.org/ 10 POSITIVE BEHAVIOUR SUPPORT STRATEGIES 1. Down syndrome-specific setting event strategies 2. Environment-specific setting event strategies 3. Effective requests 4. Offering choices 5. Visual supports for behavioural expectations and predictability 6. Incorporating preferences 7. Safety signals 8. Functional communication training 9. Positive …
Continue reading “T21MOM – EPISODE 15 : SUSAN FAWCETT DIRECTOR OF THERAPY, BEHAVIOUR, AND FAMILY SUPPORT SERVICES – DSRF”
Actor, Producer, Director, DS Advocate, and Motivational Speaker Brian Donovan has an in depth conversation with Mary and Ron about his sister Kelly. The conversation roams from Brian & Kelly’s inseparable relationship that he documents in the film “Kelly’s Hollywood”, to his advocacy work, motivational speaking, and growing up in a very special neighbourhood in …
Continue reading “T21Mom Special Presentation – Brian Donovan & Kelly’s Hollywood”
Mary talks with Jen Jacob, Founder of the Down Syndrome Diagnosis Network, about their work with health care professionals so they better understand Down syndrome, and issues such as the impact of delivering the diagnosis. They also talk about the increasing success of the Rockin’ Mom’s Retreat. https://www.dsdiagnosisnetwork.org/
Mary talks with Jenna about a form of Down syndrome called Translocation that can be inherited under certain circumstances. It’s a fascinating and easy to understand look at the genetics of Down syndrome.