Mary and Ron discuss Christmas traditions and how she includes Ainsley in all of them.
Don’t forget to send an e-mail to info@t21mom.com to enter the contest to win one of two Sm:)e Band Christmas CD’s.
https://www.smileband.ca/ The Smile Band Website
In the last episode of Season 1 Mary and Ron talk about how it all started. From our favourite episodes, where the show might go in Season 2, what we’re doing on the hiatus, and some possible forays into other media streams it’s a broad ranging discussion.
There is wine, beer, and Miss A’s Cookies to help us along.
T21Mom.com Web Site Design by Doug at Doug Murray Productions
Theme Music by Nam Kyo Kim at Skylark Therapy
For more resources:
Down Syndrome Resource Foundation
Mary and Ron talk about Mary’s recent trip to Nashville for the Rockin Mom Retreat. Mary talks to a number of the Retreat guests about where they’re from and what they do for self-care.
Head on over to the T21Mom Facebook page for some pics and videos. A word of caution – wine may have been involved.
For more on musician Luke Bryan
For more on musician Mark Wills
Mary talks with Dr. Karen Bopp about a dual diagnosis of Down syndrome and Autism, something previously thought impossible. They also talk about therapies, diagnosis methods, and support networks.
Links mentioned in the show:
BRITISH COLUMBIA LOCAL INFANT DEVELOPMENT PROGRAM
Mary and Ron discuss the need to build a group of friends and family for emotional support.
Mary talks about her experiences with creating an Individualized Education Plan for Ainsley and the struggle of getting the school to play a positive role in the process.
Link to the One Pager
Mary talks with Katie Rinald of Blackbird Special Education about her approach to intensive potty training.
Blackbird Special Education http://blackbirdse.com Katie@blackbirdse.com
Chummie Alarms https://chummiebedwettingalarm.com/
Mary talks with Jen Ghioda, an Early Intervention Support Worker, about her role in finding and securing resources for families of children with DS.
DOWN SYNDROME RESOURCE FOUNDATION https://www.dsrf.org/
10 POSITIVE BEHAVIOUR SUPPORT STRATEGIES
1. Down syndrome-specific setting event strategies
2. Environment-specific setting event strategies
3. Effective requests
4. Offering choices
5. Visual supports for behavioural expectations and predictability
6. Incorporating preferences
7. Safety signals
8. Functional communication training
9. Positive reinforcement of desired behaviour via praise and other rewards
10. Actively ignore and positively redirect minor problem behaviour
Here is the article Susan talked about:
Patel, L., Wolter-Warmerdam, K., Leifer, N., & Hickey, F. (2018). Behavioral characteristics of individuals with Down syndrome. Journal of Mental Health Research in Intellectual Disabilities, 11(3), 221-246.
Google scholar link: https://www.tandfonline.com/doi/abs/10.1080/19315864.2018.1481473
Actor, Producer, Director, DS Advocate, and Motivational Speaker Brian Donovan has an in depth conversation with Mary and Ron about his sister Kelly. The conversation roams from Brian & Kelly’s inseparable relationship that he documents in the film “Kelly’s Hollywood”, to his advocacy work, motivational speaking, and growing up in a very special neighbourhood in the ‘60s and ‘70s
Brian Donovan Web http://www.briandonovan.org/
Kelly’s Hollywood http://kellyshollywood.com/Welcome.html
Brian Donovan – You Can Change The World https://www.youtube.com/watch?v=Xj9TkAwc6-0