Mary talks with Jenna about a form of Down syndrome called Translocation that can be inherited under certain circumstances. It’s a fascinating and easy to understand look at the genetics of Down syndrome.
Mary has a wide ranging discussion with Cally Wesson, CEO of British Columbia’s chapter of Variety The Children’s Charity. Cally explains the history of Variety, services that they provide, volunteers, and events they put on, including the annual Show Of Hearts Telethon. Recorded on location at the Variety offices in Burnaby B.C.
T21Mom – Episode 9 : Hina, the Down Syndrome Resource Foundation’s Occupational Therapist joins us for a conversation about how children with Down syndrome can learn to understand and control their body’s movements, and why the term “Occupational” is a bit of a misnomer.
Understanding Sensory Processing – https://www.spdstar.org/basic/understanding-sensory-processing-disorder
Developmental Progression Pyramid – (the pyramid is included in these presentation notes that can be found on the DSRF website) https://www.dsrf.org/media/Lille%20Ryan%20and%20Hina%20Mahmood%20Increasing%20Independence%20in%20School%20Aged%20Children%20with%20DS%20FINAL.pdf
When to Consult an OT – Document that outlines what types of skills OTs can work on with kids. http://www.dsrf.org/media/When%20to%20consult%20an%20OT.pdf
Mary talks about life as a single mother of a special needs child. Mary’s experiences as advocate, parent, doctor and therapist make for a lively discussion.
Receiving the Diagnosis
Mary talks about her experience receiving Ainsley’s Down syndrome diagnosis through pre-natal testing, and her process of acceptance.