In the opening episode of Series 2 Mary and Ron talk about frustration, tears, and how to recognize when you’ve “maxed out” as a special needs parent.
In the last episode of Season 1 Mary and Ron talk about how it all started. From our favourite episodes, where the show might go in Season 2, what we’re doing on the hiatus, and some possible forays into other media streams it’s a broad ranging discussion.
There is wine, beer, and Miss A’s Cookies to help us along.
For more resources:
Mary and Ron talk about Mary’s recent trip to Nashville for the Rockin Mom Retreat. Mary talks to a number of the Retreat guests about where they’re from and what they do for self-care.
Head on over to the T21Mom Facebook page for some pics and videos. A word of caution – wine may have been involved.
For more on musician Luke Bryan
For more on musician Mark Wills
Mary talks with Dr. Karen Bopp about a dual diagnosis of Down syndrome and Autism, something previously thought impossible. They also talk about therapies, diagnosis methods, and support networks.
Links mentioned in the show:
Mary talks about her experiences with creating an Individualized Education Plan for Ainsley and the struggle of getting the school to play a positive role in the process.
Link to the One Pager
Mary talks with Jen Ghioda, an Early Intervention Support Worker, about her role in finding and securing resources for families of children with DS.
T21MOM – EPISODE 15 : SUSAN FAWCETT DIRECTOR OF THERAPY, BEHAVIOUR, AND FAMILY SUPPORT SERVICES – DSRF
DOWN SYNDROME RESOURCE FOUNDATION https://www.dsrf.org/
10 POSITIVE BEHAVIOUR SUPPORT STRATEGIES
1. Down syndrome-specific setting event strategies
2. Environment-specific setting event strategies
3. Effective requests
4. Offering choices
5. Visual supports for behavioural expectations and predictability
6. Incorporating preferences
7. Safety signals
8. Functional communication training
9. Positive reinforcement of desired behaviour via praise and other rewards
10. Actively ignore and positively redirect minor problem behaviour
Here is the article Susan talked about:
Patel, L., Wolter-Warmerdam, K., Leifer, N., & Hickey, F. (2018). Behavioral characteristics of individuals with Down syndrome. Journal of Mental Health Research in Intellectual Disabilities, 11(3), 221-246.
Google scholar link: https://www.tandfonline.com/doi/abs/10.1080/19315864.2018.1481473